At the beginning of 2017, I learned about a young child, named Willow who lives in Mississippi. She has a deadly childhood disease called MSD (Multiple Sulfatase Deficiency). To learn more about MSD, visit United MSD Foundation. But briefly, it is a rare genetic disease that slowly robs the child of function in an ALS manner until they generally die around the age of ten. It is rare and there are less than 50 children worldwide with MSD.
The scientists have identified the gene and they know how to create the cure. Excellent!! However, because the disease is rare, the pharmaceutical companies don’t want to spend their vast amounts of money on bringing the cure to the children. Greed is an awful thing. This leaves the funding in the hands of the parents and others who want to help these precious children. My heart ached! In my efforts to help Willow, I learned of other children worldwide with this disease and each one holds such a special place in my heart, even though I have never met them. They are God’s children, and therefore very special!
According to the dictionary definition, compassion means: “a feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering.” Many people claim to have compassion for people and situations, but I believe compassion without action is a travesty. The last part of the definition gets lost – “Accompanied by a strong desire to alleviate suffering.” Even the poorest of people can act with compassion in many ways. Galatians 6:2 says, “Carry each other’s burdens, and in this way you will fulfill the law of Christ.” That is true compassion!
During this year of advocating, posting, begging, educating and most of all praying for the situation these children are in, I see those who act with compassion but I see so many who just blow right by it. They might like a post on Facebook, or shake their head and say, “That is so sad” but where is the action?? Maybe I am naïve, but I just don’t understand how many people are so superficial when it comes to the lives of these precious children. It’s bad enough that the Pharmaceutical companies are ignoring them but love is our primary directive from Jesus. I see a lot of love toward these children and God Bless those who care enough to act! However, I see a lot of people who don’t show true love and compassion. It saddens me greatly, as I’m sure it saddens our Lord.
Many may say, “I support this charity or give to this organization.” I am not rich in money but am rich in the Lord’s joy and completely trust Him with my life. My family also has certain charities we support regularly. Giving or helping in one place, does not prevent a person from helping in another. I don’t recall any verse in the Bible that references our Christ refusing to help somebody because He had already helped another person. Compassion doesn’t work that way. Compassionate action is giving and doing above and beyond what you have. God will provide for those who trust in Him, so when people use the excuse that they don’t have the resources, they are not trusting in the words of our Lord.
I believe the meaning of compassion is already defined by Christ’s second most important commandment, “Love your neighbor as yourself.” and that means action…not just superficial words.
GALLERY OF MSD Sparkling Stars
- Willow: Cure MSD - Warriors for Willow